This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent. It was created to be used in the All of Us Research Program (All of Us), which is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent. It was created to be used in the All of Us Research Program (All of Us), which is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

This consent form, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, provides information about the DNA results available to participants and elicits their preferences, e.g., do not return results, not sure, or return results. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals underrepresented in health research

This form includes information for participants and collects a consent for the the All of Us Research Program (All of Us) to access to their electronic health records. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals underrepresented in health research.

This consent form is utilized by the All of Us Research Program (All of Us), a health research program, funded by the National Institutes of Health, that will study health data from over one million people in the United States. One of the goals of All of Us is to enroll and collect data from individuals underrepresented in health research.

Courtright-Lim designed this decision tree to help researchers, funding agencies, institutional review boards, and ethics committees determine when social interventions may result in a better use of limited resources than developing and applying germline gene editing.

Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer genetic genealogy companies.

To examine participants' views of prenatal testing, Steinbach and colleagues developed a scenario that describes a 40-year-old pregnant patient who is offered prenatal screening for trisomies 13, 18 and 21. After reading the survey, participants were asked whether the patient should take the tests, which ones, what actions to take if the patient recieves a positive result, and other questions.

This semi-structured interview guide is intended for use with individuals diagnosed with a sex chromosome aneuploidy (SCA) or with parents of a child diagnosed with a SCA. It employs open-ended questions to learn about their experiences living with and receiving care for their genetic condition, support systems, and other topics.

Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and resesarch using them, perceptions of their health status, and other topics. Please check your downloads folder for the survey after you click the link to this content.