Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentially use personal health data as part of their research. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experiences and attitudes of early adopters of self-tracking health data. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which seeks diverse participants to ensure equitable benefits of precision medicine research.

Rubanovich and colleagues created the DNA Ancestry Testing Survey to examine the impact of DNA ancestry test results on perception of ethnic and racial identities. The 13 question survey was sent to study participants after they had received DNA ancestry results and isntructions on how to interpret the information. Two of the questions are open-ended and the others ask participants to choose between three responses (e.g., Yes, No, Somewhat).

Schairer and colleagues created this focus group guide which includes moderator questions that evaluate the effectiveness of a set of 4 narrated slide show videos about gene drive technologies for lay audiences (see this database foe the videos).

Schairer and colleagues created 4 Narrated Slideshow Videos that provide an introduction to gene drive technologies for lay audiences. Each narrated video is between 5-6 minutes. Slide Show 1, "Mosquitoes in California" covers information on mosquitoes in CA and basic facts about mosquitos. Slide Show 2, "Genetic Engineering for Mosquito Control", offers a comparison of genetically engineered (GE) sterile male mosquitoes with GE gene drive mosquitoes.

Lehmann and colleagues created a list of questions for academic researchers and industry researchers to consider prior to forming an academic-industry partnership for the purposes of managing conflicts of interest.

Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD). The scale includes questions about how often participants experienced emotional responses in the past week (never, rarely, sometimes or often) after receiving genetic test results.

Carere and colleagues created the 6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey, a short 5 minute survey sent to study participants who had not responded to the 6 Month Follow-Up Survey (6 M Survey). The purpose of this survey is to give non-responders an opportunity to quickly answer the most important questions from the 6 M Survey, indicate their reasons for not responding to the 6 M Survey, and complete the original, longer 6 M Survey.

Carere and colleagues created the 6 Month Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 6 months after consumers received their results. The baseline survey used in the PGen Study is part of a longitudinal series and the final of three surveys designed to examine experiences with PGT at different points in time (baseline; ~2 weeks after results; ~6 months after results).