equity and justice in genetics | ELSIhub

equity and justice in genetics

Rachele M Hendricks-Sturrup

Read more about Rachele M Hendricks-Sturrup

Evidence Based Medicine

precision medicine

Genomic medicine implementation

trustworthiness

equity and justice in genetics

ELSIcon2022 Paper: Toward an anthropology of rare disease

Read more about ELSIcon2022 Paper: Toward an anthropology of rare disease

ELSIcon2022 • Paper • May 27, 2022

Meghan Halley, Colin Halverson, Marsha Michie

ELSIcon2022 Flash: Participant understandings of biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa

Read more about ELSIcon2022 Flash: Participant understandings of biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa

ELSIcon2022 • Flash • May 27, 2022

Manono Luthuli, Nothando Ngwenya, Dumsani Gumede, Resign Gunda, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily B. Wong, Janet Seeley

ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities

Read more about ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities

ELSIcon2022 • Panel • May 27, 2022

Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee

ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI

Read more about ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI

ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice

Read more about ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice

ELSIcon2022 • Panel Session 8 • June 1, 2022

Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie

ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail

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ELSIcon2022 • Panel 10 • June 1, 2022

Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan

ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future

Read more about ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future

ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022

Donrich Thaldar, Bonginkosi Shozi

ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa

Read more about ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa

ELSIcon2022 • Paper • June 2, 2022

Erin Burke, Michèle Ramsay, June Fabian

ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research

Read more about ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research

ELSIcon2022 • Panel Session 12 • June 2, 2022

Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke

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