equity and justice in genetics

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

Read more about ELSI of implementing clinical genetic testing in kidney disease and transplantation care

ELSIcon2024 • Paper • June 12, 2024

Authors:

Speaker: Tamar Schiff, MD (she/her/hers) - NYU Grossman School of Medicine

Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

Read more about Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

ELSIcon2024 • Paper • June 12, 2024

Authors:

Speaker: Ilaria Galasso, PhD - Technical University of Munich (Germany)

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

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ELSIcon2024 • Paper • June 12, 2024

Authors:

Speaker: Robert I. Field, JD, MPH, PhD - Drexel University

Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

Read more about Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

ELSIcon2024 • Panel • June 12, 2024

Authors:

Corresponding Author: Julia Brown, PhD (she/her/hers) - University of California, San Francisco

Panelist: Marsha Michie, PhD (she/her/hers) - Case Western Reserve University School of Medicine

Panelist: Megan Allyse - Mayo Clinic

Panelist: Shameka Poetry Thomas, PhD (she/her/hers) - The Ohio State University - College of Medicine

ELSIcon2024: Identifying and Dismantling Systemic Ableism in Prenatal Screening

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ELSIcon2024 • Paper • June 11, 2024

Authors:

Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) - University of Kentucky

ELSIcon2024: Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data

Read more about ELSIcon2024: Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data

ELSIcon2024 • Paper • June 11, 2024

Authors:

Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio

ELSIcon2024: Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making

Read more about ELSIcon2024: Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making

ELSIcon2024 • Panel • June 11, 2024

Authors:

Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University

Panelist: Jeroen Jansen, PhD (he/him/his) – University of California, San Francisco

Panelist: Shawn Winsor, MHSc, PhDc (he/him/his) – University of Toronto (Canada)

Panelist: Shawneequa Callier, MA JD – The George Washington University

ELSIcon2024: Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada

Read more about ELSIcon2024: Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada

ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra

Read more about ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra

ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan

ELSIcon2024: Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research

Read more about ELSIcon2024: Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research

ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City

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