equity and justice in genetics

ELSIcon2024: Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study

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ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center

ELSIcon2024: From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine

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ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

ELSIcon2024: Whose Science? Whose Knowledge? Equitable Partnerships and Diverse Teams for Just Genomic Research

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ELSIcon2024 • Panel • June 10, 2024

Authors:

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

ELSIcon2024: Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era

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ELSIcon2024 • Panel • June 10, 2024

Authors:

Corresponding Author: Natalie Lira

Panelist: Jim Tabery, PhD – University of Utah

Panelist: Marie Kaniecki, MPH (she/her/hers) – University of California Los Angeles

Panelist: Jennifer James, PhD, MSW, MSSP – University of California, San Francisco

Rachele M Hendricks-Sturrup

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Evidence Based Medicine

precision medicine

Genomic medicine implementation

trustworthiness

equity and justice in genetics

ELSIcon2022 Paper: Toward an anthropology of rare disease

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ELSIcon2022 • Paper • May 27, 2022

Meghan Halley, Colin Halverson, Marsha Michie

ELSIcon2022 Flash: Participant understandings of biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa

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ELSIcon2022 • Flash • May 27, 2022

Manono Luthuli, Nothando Ngwenya, Dumsani Gumede, Resign Gunda, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily B. Wong, Janet Seeley

ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities

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ELSIcon2022 • Panel • May 27, 2022

Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee

ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI

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ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice

Read more about ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice

ELSIcon2022 • Panel Session 8 • June 1, 2022

Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie

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