equity and justice in genetics | ELSIhub

equity and justice in genetics

ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail

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ELSIcon2022 • Panel 10 • June 1, 2022

Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan

ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future

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ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022

Donrich Thaldar, Bonginkosi Shozi

ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa

Read more about ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa

ELSIcon2022 • Paper • June 2, 2022

Erin Burke, Michèle Ramsay, June Fabian

ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research

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ELSIcon2022 • Panel Session 12 • June 2, 2022

Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke

ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest

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ELSIcon2022 • Paper • June 2, 2022

Ilaria Galasso, Susi Geiger

ELSIcon2022: Paper Session 9

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ELSIcon2022 • Paper Session 9 • June 2, 2022

Includes discussion material from Erin Burke, Ilaria Galasso, and Crystal Gonzalez.

ELSIcon2022 Paper: Fresh Air for Genetic Data Sharing

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ELSIcon2022 • Paper • June 3, 2022

Mary Majumder, Christi Guerrini, Amy McGuire, Jill Robinson, Matthew Blank, Robert Cook Deegan, Juli Bollinger, Janis Gear

ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity

Read more about ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity

ELSIcon2022 • Paper • June 3, 2022

Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan

ELSIcon2022: Paper Session 13

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ELSIcon2022 • Paper Session 13 • June 3, 2022

Includes discussion material from Kayte Spector-Bagdady, Arti Singh, Roselle Ponsaran, and Mary Majumder.

ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience

Read more about ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience

ELSIcon2022 • Panel 5 • May 31, 2022

Silvia Barnoy, Efrat Dagan, Sue Kim, Maria Caiata-Zufferey, Maria Katapodi