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What precision medicine can learn from rare genetic disease research and translation

AMA Journal of Ethics

Holly K. Tabor, Aaron Goldenberg

2018

Publication

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience

Mol Genet Genomic Med

Kathryn M. Porter, Tia L. Kauffman, Barbara A. Koenig, Katie L. Lewis, Heidi L. Rehm, Carolyn Sue Richards, Natasha T. Strande, Holly K. Tabor, Susan M. Wolf, Yaping Yang, Laura M. Amendola, Danielle R. Azzariti, Jonathan S. Berg, Katie Bergstrom, Leslie G. Biesecker, Sawona Biswas, Kevin M. Bowling, Wendy K. Chung, Ellen W. Clayton, Laura K. Conlin, Gregory M. Cooper, Matthew C. Dulik, Levi A. Garraway, Arezou A. Ghazani, Robert C. Green, Susan M. Hiatt, Seema M. Jamal, Gail P. Jarvik, Katrina A. B. Goddard, Benjamin S. Wilfond, The members of the CSER Actionability and Return of Results Working Group

2018

Publication

Patient and family social media use surrounding a novel treatment for a rare genetic disease: A qualitative interview study

Genet Med

Alexander A. Iyer, Julie R. Barzilay, Holly K. Tabor

2020

Publication

"Before Facebook and before social media…we did not know anybody else that had this”: Parent perspectives on internet and social media use during the pediatric clinical genetic testing process

J Community Genet

Krysta S. Barton, Andrew Wingerson, Julie R. Barzilay, Holly K. Tabor

2018

Publication

Cloning and infertility

Cambridge quarterly of healthcare ethics

Carson Strong

1998

Publication

The ethics of human reproductive cloning. Reproductive biomedicine online

Reproductive biomedicine online

Carson Strong

2005

Publication

Fetal anomalies: Ethical and legal considerations in screening, detection, and management

Clinics in perinatology

Carson Strong

2003

Publication

Cloning and adoption: A reply to Levy and Lotz

Bioethics

Carson Strong

2008

Publication

Reproductive cloning combined with genetic modification

Journal of medical ethics

Carson Strong

2005

Publication

Theoretical and practical problems with wide reflective equilibrium in bioethics

Theor Med Bioeth

Carson Strong

2010

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What precision medicine can learn from rare genetic disease research and translation

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience

Patient and family social media use surrounding a novel treatment for a rare genetic disease: A qualitative interview study

"Before Facebook and before social media…we did not know anybody else that had this”: Parent perspectives on internet and social media use during the pediatric clinical genetic testing process

Cloning and infertility

The ethics of human reproductive cloning. Reproductive biomedicine online

Fetal anomalies: Ethical and legal considerations in screening, detection, and management

Cloning and adoption: A reply to Levy and Lotz

Reproductive cloning combined with genetic modification

Theoretical and practical problems with wide reflective equilibrium in bioethics

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Featured Topics

30591 - 30600 of 31758 Topics

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