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  • Grant Abstract

    Managing Genetic Information: Policies for US Nurses

    The purpose of this project is to address the professional dilemmas of nurses related to genetic information about patients and their families. Continuing education in genetics is not widely…
    • Ethics
    • Genetic Counseling
    • genetic disorder
    • Genetics
    • health care professional practice

  • Grant Abstract

    ELSI Core for the Cooperative Human Linkage Center (CHLC)

    The CHLC was the first genome center to have an ELSI core as an ongoing part of the center. The ELSI core has two areas of focus. First, it has formed a multidisciplinary IRB-type committee that…
    • genetic mapping
    • Genome
    • human genetic material tag

  • Grant Abstract

    National Information Resource on Ethics and Human Genetics

    The goal of this project is to collect, and disseminate information on the ethical, legal, and social implications of human genetics. 'Human genetics' includes the HGP, genetic testing and…
    • Ethics
    • human population genetics
    • Information Systems

  • Grant Abstract

    Genome Mapping: Implications for Health and Life Insurance

    This project will examine the moral basis of, and legal and policy framework for, health and life insurance in light of the increase that the HGP is expected to generate in genetic screening capacity…
    • Ethics
    • genetic mapping
    • Genetics
    • handbook
    • health economics

  • Grant Abstract

    Genetic Testing in the Ashkenazi Jewish Population

    The objective of this research is to conduct and evaluate a pilot program for the simultaneous screening of carriers for CF, Tay Sachs Disease (TSD) and Gaucher's Disease (GD) in the Ashkenazi…
    • Amniocentesis
    • Anxiety
    • chorionic villus sampling
    • Cystic Fibrosis
    • Cytogenetics

  • Grant Abstract

    Academic-Industry Relationships in Genetics

    This study will use survey and case study methodologies to examine Academic-Industry Relations (AIRs) in genetics and related fields. Results will contribute to assessment of: 1) how AIRs have…
    • biotechnology
    • Ethics
    • Genetics
    • governmental health /scientific organization
    • Health

  • Grant Abstract

    The Secret of Life

    The Secret of Life is a series of eight, 60-minute programs for PBS broadcast with extensive educational and outreach materials. The goal of the program is to make molecular biology intelligible to…
    • curriculum
    • health science research
    • Informatics
    • Information Dissemination
    • Molecular Biology

  • Grant Abstract

    "The Stigma of Disease: Implications of Genetic Testing"

    The purpose of this project is to investigate the stigmatization of the sick as it applies to new developments in genetic testing, screening, and diagnostics. Using the methods of medical and social…
    • stigma
    • genetic testing

  • Grant Abstract

    Human Genome Project Education and Outreach

    Educational objectives of the Human Genome Mapping Center at Stanford University will be achieved by an educational outreach program designed to provide the public with a basic, working understanding…
    • curriculum
    • Ethics
    • genetic disorder
    • genetic disorder diagnosis
    • genetic mapping

  • Grant Abstract

    Human Genome Education Model Program

    This project is a multi-step cooperative educational effort to target both consumers and multidisciplinary health professionals for education on the Human Genome Project and its ethical, legal, and…
    • behavioral /social science research tag
    • education evaluation /planning
    • Ethics
    • Genetic Models
    • Genome