Managing Genetic Information: Policies for US Nurses

NIH Jan 15, 1993 | R01

Managing Genetic Information: Policies for US Nurses

Principal Investigator(s): Scanlon, Colleen M.

Institution: American Nurses Association

FOA Number: N/A

Abstract

The purpose of this project is to address the professional dilemmas of nurses related to genetic information about patients and their families. Continuing education in genetics is not widely available for nurses, and there is currently no credentialing process for advanced levels of nursing practice in genetics. The objective of this project is to survey a national sample of practicing nurses to obtain accurate information about the ways in which nurses are currently eliciting, using, and storing genetic information about patients and their families, and to identify the ethical dilemmas that nurses face in their various roles in the identification of genetic traits, chromosomal abnormalities, and diseases with a clear genetic basis.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R01

Project Number:
R01HG000545

Start Date:
Jan 15, 1993

End Date:
Dec 31, 1994

PROJECT TERMS:

Ethics, Genetic Counseling, genetic disorder, Genetics, health care professional practice, health related legal, human data, Information Dissemination, Information Systems, nursing administration, patient /disease registry, Questionnaires

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