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Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Video
Exploring Difference in the Biology Classroom: What Genetic Ancestry Tests Mean (and What They Don't)
Presenters: Janina Jeff, PhD, MS & Jada Benn Torres, PhD Co-Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD Date: April 11 2023, 3-4 pm PT / 6-7 pm ET Genetic…- DTC
- genetic ancestry testing
- race and genetics
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Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
Research Tool
ELSI Research Methods Questionnaire
Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics. -
Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos
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Collection
How Do We Diversify Human Genomics Research?
The lack of diversity in human genomics research and reference datasets is a known problem, with real-life consequences, but the path forward remains elusive. Solutions to the problem of sampling…- genetic diversity
- Admixture
- anti-racism
- FAIR data principles
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Video
ELSIcon2022: Paper Session 11
ELSIcon2022 • Paper Session 11 • June 2, 2022 Includes discussion material from Anya Prince, Jessica L. LeBlanc, Lisa Dive and Ainsley Newson.- Genetic testing and screening
- Live
- Paper
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Video
Exploring Difference in the Biology Classroom: Engaging with Genetic Disability and Difference
Presenters: Kara Ayers, PhD & Joel Michael Reynolds, PhD Co-Moderators: Rob O'Malley, PhD & Marnie Gelbart, PhD Date: March 8 2023, 3-4 pm PT / 6-7 pm ET…- Continuing Education
- disability
- biology education
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Video
Q&A with Guest Editors of Hastings Report Special Issue
CERA/Hastings Center Report Special Issue: Envisioning A More Just Genomics. The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special… -
Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening