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Event
ELSI Friday Forum | Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Join us on Friday, May 10, 2024, for the next ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned, with speakers: Ms. Arafa… -
Event
Population Descriptors for Legacy Genomic Data: Challenges and Future Directions
Several National Institutes of Health (NIH) Institutes, Offices, and Centers* are partnering to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the… -
Funding Opportunity
Research Opportunity Announcement for the Advancing Health Research through Ethical, Multimodal AI Initiative
- health research
- Artificial intelligence
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Event
Genetic Ancestry and Perceptions of Race: Impacts in Social and Medical Contexts
Genetic Ancestry and Perceptions of Race: Impacts in Social and Medical Contexts” that will be held at the University of Pennsylvania on Thurs. May 9. The event is co-sponsored by Penn’s Department… -
Research Tool
Hierarchical Mapping Technique
The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric… -
Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
- social marketing
- Social Policies
- Advisory Committees
- educational models
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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Grant Abstract
GENETIC ATTRIBUTIONS AND RACIALIZED PERCEPTIONS OF OBESITY
The proposed research will examine primary care physicians’ attitudes and beliefs about genetic causes of obesity in Black and White patients, as well as perceptions among Black and White adults with…- Genetic Predisposition to Disease
- patient agents
- Patient Care
- Primary Care Physician
- Stigmatization
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study