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Grant Abstract
Ethical Priorities in for Clinical Uses of Genome Research
This study will focus on setting priorities in the screening, testing, counseling, and treatment of pre-symptomatic and contingent genetic conditions. Under the assumption that unlimited resources…- biotechnology
- Ethics
- Family Planning
- gene therapy
- Genetic Counseling
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Grant Abstract
Human Heredity in American Popular Culture
This study will explore the meaning of human genetics in popular culture, within the context of changing ideas about heredity and eugenics since the turn of the century. Drawing on the methods of…- Behavioral Genetics
- Belief
- choice
- culture
- Ethics
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Grant Abstract
A Paradigm Approach to Ethical Problems in Genetics
This project utilizes a method of ethical analysis described as 'paradigm analysis' to develop a comprehensive and systematic framework for ethical issues raised by genomic information in…- behavioral medicine
- Ethics
- gene therapy
- Genetic Counseling
- genetic disorder
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Grant Abstract
Genetic Counselors as Educators on Human Genome Issues
This project will utilize the expertise of genetic counselors in developing, implementing and evaluating education programs for health professionals which focus on the clinical applications of human…- curriculum
- Diagnostic tests
- Ethics
- Genetic Counseling
- genetic disorder diagnosis
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Grant Abstract
Organizing the HGI: Social Impact and Technology Design
This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…- comprehensive medical planning
- Decision Making
- Ethics
- Genome
- health /scientific organization
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Grant Abstract
Cystic Fibrosis Mutation Screening and Counseling
Women of reproductive age and the partners of those who test positive will be screened for CF mutations by new methods of rapid DNA analysis in this pilot study. The target population includes large…- African American
- Asian Americans
- Blood Tests
- caucasian American
- Cystic Fibrosis
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Grant Abstract
Labor Conference on the Workplace and the Human Genome
This conference will bring together experts in science, ethics, and law, with experts in knowing and representing the needs of American Workers. The conference will build a base of knowledge among…- Ethics
- Genome
- Health behavior
- health insurance
- health science research
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Grant Abstract
Two Units: Molecular Genetics and Environmental Chemistry
This project will develop a nine-week module to be used in the biology curriculum for high school students, as part of the NIH/ADAMHA Science Education Partnership awards. The module, 'Molecular…- Biology
- Chemistry
- computer program /software
- Computer Simulation
- Continuing Education
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Grant Abstract
Cystic Fibrosis Screening: An Alternative Paradigm
The major goal of this study is to determine the feasibility of a CF screening program that, while incorporating pre- and post-test education for people with negative screening tests, provides…- Blood Tests
- Cystic Fibrosis
- diagnosis design /evaluation
- diagnosis quality /standard
- Ethics
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Grant Abstract
Perception of Carrier Status by Cystic Fibrosis Siblings
This project seeks to delineate problems to be addressed in testing programs in this study of perception of carrier status by CF siblings. By interviewing the adult siblings of CF patients and the CF…- Anxiety
- caucasian American
- Cognition
- Cystic Fibrosis
- depression