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Research Tool
PRIM&R Member Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
The PRIM&R Member Survey was used in the ROMP study to elicit the perspectives of a random selection of human subjects research professionals from the Public Responsibility in Medicine and… -
Research Tool
Patient Focus Group Guide, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This focus group guide assesses patient attitudes toward research on medical practices within usual care. -
Research Tool
Informing or Asking (Video), Attitudes about the Ethics of Research on Medical Practices (RoMP)
This 2 minute video was utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care. The video explains general… -
Research Tool
Approaches to Research on Medical Practices (Video), Attitudes about the Ethics of Research on Medical Practices (RoMP)
This 3 minute video was utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care. The video explains medical record… -
Research Tool
Which Medication is Best? (Video), Attitudes about the Ethics of Research on Medical Practices (RoMP)
This 3 minute video was utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care. The video explains the influences… -
Research Tool
IRB Member Focus Group Guide, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This focus group guide assesses the perspectives of IRB professionals toward research on medical practices within usual care. It was utilized in the ROMP study for focus groups conducted for the… -
Research Tool
General Population and Patient Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This self-administered, web-based survey using an experimental between-group design to compare the effects of four informational aids on respondents’ understanding of core aspects of research on… -
Research Tool
Genome Empowerment Scale (GEmS)
The GEmS can be used to assess the genomic healthcare empowerment of parents (e.g., the meaning of a diagnosis for their child, emotional management of the process, their confidence in utilizing the… -
Research Tool
Optional Results Choice Aid (ORCA)
The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable,… -
Research Tool
Assessment of Strategic Integration of Genomics across Nursing (ASIGN) Maturity Matrix
The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or…