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291 - 300 of 316 Topics
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Video
Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship
Catherine Hammack-Aviran, MA, JD - Vanderbilt University ELSIconversations - April 2, 2021 Direct-to-consumer (DTC) genetic testing is transforming how people view their individual, familial, and…- direct-to-consumer genetic testing
- ancestry
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Video
Using an implementation research tool to guide the implementation of non-invasive prenatal screening
Tierry M. Laforce, MA, PhD Candidate - Université de Montréal ELSIconversations - April 16, 2021 cffDNA screening has changed the landscape of prenatal screening. In Canada, 2 provinces and 1…- Prenatal genetic screening
- precision medicine
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Video
Part 1. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Mary A. Majumder, JD, PhD - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
Part 2. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Amanda M. Gutierrez, MPH - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara L. Ackerman, MPH, PhD - University of California San Francisco ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry…- Ethics of precision medicine
- precision medicine research
- ELSIconversations
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Video
Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara J. Knight, PhD - University of Utah ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health care system (…- precision medicine research
- Ethics of precision medicine
- ELSIconversations
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Video
Indigenous Peoples & Genomics: Starting a Conversation
This video is linked to the publication: Indigenous Peoples and Genomics: Starting a Conversation Author Names Jenny Morgan Rachel R. Coe Rochelle Lesueur Ruth Kenny Roberta Price Nancy…- Indigenous Peoples
- Genomics
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Video
ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19