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In the Media
‘It Will Consume Your Life’: 4 Families Take on Rare Diseases
The New York Times |Gina Kolata- Rare Diseases
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In the Media
The Ethics of Genetics Testing: “Duty of Care”, Consent and Data Security PODCAST Opinionated Science: Episode 9
Technology Networks |Laura Elizabeth Lansdowne, Ruairi J MacKenzie, Molly Campbell, Holly Large- Ethics
- genetic testing
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In the Media
The Wilderness of Rare Genetic Diseases and the Parents Navigating It
The New York Times |Brendan Borrell- Genetic Diseases
- Parents
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In the Media
We need to talk about big data and genomics. Here's why – and how
The European Sting |Anna Middleton- Genomics
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
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Grant Abstract
Genomics, Biometrics and Identity
Public Health Relevance Section Policies in the U.S. increasingly rely upon genomic information as a biometric to inform visa application processes, by verifying biological relationship claims or…- Advocate
- Affect
- Attention
- authority
- base
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Grant Abstract
The Stanford Training Program in ELSI Research
PUBLIC HEALTH RELEVANCE The proposed research training program at Stanford University is to create independent scholars who can conduct rigorous research on ethical, legal and social implications…- Research
- Training Programs
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…- Address
- Adolescent
- Adolescent Development
- Adult
- Affect
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Grant Abstract
FOSTERING INTEGRITY AND SOCIETAL IMPACT IN GENOMICS THROUGH MANAGEMENT AND LEADERSHIP PRACTICES
PUBLIC HEALTH RELEVANCE: Researchers engaged in conducting genetic and genomic science are significant players in advancing biomedical science and health care. Through their work, they are a vital…- Academic achievement
- Address
- Advisory Committees
- Affect
- Behavior