• NIH Sep 20, 2019 | R01

    Implementation and Implications of Sickle Cell Trait Screening in the NCAA

    Principal Investigator(s): ROYAL, CHARMAINE DAWN MARIE;

    Institution: DUKE UNIVERSITY

    FOA Number: PA-17-444

    Abstract

    PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the United States (US). Estimates suggest that over 2,000 NCAA Division I student-athletes with SCT will be identified under the screening policy and that, without intervention, about seven NCAA Division I student-athletes would die suddenly from a complication of SCT over a 10-year period. Our proposed project will facilitate the identification and resolution of issues that may impede the successful detection of SCT carriers and the application of effective interventions; it also aims to advance research and practice pertaining to the implementation of similar public health policies that target healthy subpopulations deemed to be at disproportionate risk.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    R01

    Project Number:
    R01HG010364

    Start Date:
    Sep 20, 2019

    End Date:
    Jun 30, 2023

    PROJECT TERMS:

    Address, Adopted, Affect, African American student, Area, Athletic, Attitude, base, Behavior, behavioral outcome, Benefits and Risks, Cessation of life, college, Complication, cost, Data, Decision Making, Detection, Dimensions, economic cost, Education, effective intervention, Effectiveness, ethical legal social implication, experience, Financial Hardship, Foundations, frontier, Future, Genetic, Genetic Counseling, Genetic Risk, Genetic Screening, Guidelines, Head, Health, Health Policy, Individual, Institution, Institutional Policy, Instruction, Intervention, Knowledge, Legal, Literature, member, Modification, Monitor, mortality, North Carolina, Outcome, Participant, Perception, Physicians, Policies, population based, prevent, Procedures, Process, programs, Public Health, Publishing, Race, Recommendation, Reporting, Research, Research Personnel, Resolution, Risk, risk minimization, Sampling, Schools, screening, screening policy, screening program, Sickle Cell Trait, social stigma, Source, Sports, Stigmatization, Structure, student athlete, Surveys, symposium, Telephone Interviews, Testing, trait, United States, Universities, Variant, waiver, Work

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