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Grant Abstract
Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)
PROJECT NARRATIVE This study aims to investigate facilitators and barriers to long-term equitable partnerships in genomics research between communities and research institutions. We focus on legal…- community based participatory research
- trustworthiness
- stakeholder perspectives
- Beneficence
- Decision making
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Grant Abstract
Managing the Uncertainty of Genetic Information in Neonates
PROJECT NARRATIVE Genetic testing is increasingly used in ill neonates and holds promise to improve care, but the uncertainty of many genetic results complicates their application to clinical…- Decision making
- genetic association
- genetic counselor
- exome sequencing
- variant of unknown significance
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Grant Abstract
iDASH Genome Privacy and Security Competition Workshop
Project Narrative We will continue the effort to promote the development of novel yet practical solutions for important privacy and security challenges in human genomic research, via organizing…- data sharing
- genomic data
- computer science
- Biomedical informatics
- Security
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Research Tool
The Parental Personal Utility Scale (Parent PrU)
The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This… -
Additional Resource
Accessibility, Inclusion, and Action in Medical Education
This report by the Association of American Medical Colleges (AAMC) and the University of California, San Francisco, School of Medicine (UCSF) shares the day-to-day experiences of learners and…- accessibility
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Additional Resource
Multimedia Accessibility
The Harvard University Digital Accessibility Services website provides an overview of how to make multimedia content accessible through captioning, transcripts, and audio descriptions.- accessibility
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Additional Resource
Creating Accessible Emails
This page written by the Harvard University Digital Accessibility Services describes how to compose an accessible email.- accessibility
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Additional Resource
Northwestern Digital Accessibility Resources
Northwestern University provides a list of accessibility resources, including a two page checklist and explanation of how to make an accessible course in Canvas.- accessibility
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Additional Resource
How Do I Make Videos Accessible?
This page written by the Digital Accessibility Program at UC Berkeley describes components of an accessible video, including accurate captions, sufficient color contrast, and audio descriptions of…- accessibility
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Additional Resource
How Do I Make Podcasts Accessible?
This page written by the Digital Accessibility Program at UC Berkeley describes how to make audio recordings, such as podcasts, accessible.- accessibility