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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…- Address
- Adopted
- base
- Basic Science
- Belief
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Grant Abstract
University of Utah Center of Excellence in ELSI research (UCEER)
PROJECT NARRATIVE The University of Utah Center for Excellence in ELSI research explores issues relevant to population testing and screening for genetic conditions in the healthcare of women and…- Address
- Advisory Committees
- Affect
- Award
- Cancer Center Planning Grant
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
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Grant Abstract
ELSI.hub: National Center for ELSI Resources and Analysis
The goal of ELSI.hub, a National Center for ELSI Resources and Analysis, is to serve as a locus for resource sharing and community building to enhance the production, sharing, and use of research on…- Address
- American
- Awareness
- base
- Bioethics
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Grant Abstract
Exploring Choice of Law Challenges in Multi-Site Precision Medicine Research
PROJECT NARRATIVE The ability to recruit and protect research participants across multiple sites and multiple states is critical to the success of large-scale precision medicine and other biomedical…- Academic Medical Centers
- Accounting
- Address
- Agreement
- Attention
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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
Project Narrative Currently, there are marked differences in variant classification among clinical laboratories, and genetic variant classification is currently in flux with improvements in the…- Address
- Adoption
- adverse outcome
- Advocate
- Affect
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Center on the Ethics of Indigenous Genomic Research
Narrative American Indian and Alaska Native concerns about genomic research have been well-documented and continue to constitute significant obstacles to participation in genomic research. Our center…- Academy
- Address
- Alaska Native
- American Indians
- Area
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude