Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers

NIH Aug 17, 2017 | R01

Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers

Principal Investigator(s): DUBOIS, JAMES M;

Institution: WASHINGTON UNIVERSITY

FOA Number: PA-16-160

Abstract

Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical manner, which will improve the quality of research data, facilitate new research in a cost-effective manner, and foster the training of new researchers.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R01

Project Number:
R01HG009351

Start Date:
Aug 17, 2017

End Date:
Jun 30, 2021

PROJECT TERMS:

Addiction, Address, Adoption, Algorithms, Attitude, base, Bioinformatics, Case Study, Clinical, Computer software, cost, cost effective, Data, Data Analyses, data anonymization, data curation, data de-identification, data sharing, data sharing networks, data warehouse, Deposition, Development, Ensure, Ethical Issues, Ethics, Evaluation, Feedback, formative assessment, Fostering, Genetic, Guidelines, Health, Health behavior, health science research, HIV, Human, implementation science, improved, innovation, Institution, Institutional Review Boards, interest, Interview, Journals, Knowledge, Literature, member, Minority Groups, Names, novel, Ownership, Participant, Policies, Process, Publications, Qualitative Methods, Qualitative Research, Recommendation, recruit, Regulation, repository, Research, Research Design, Research Ethics, Research Methodology, Research Personnel, Research Training, Resources, Risk Factors, Sampling, Science, software development, Stigmatization, Students, Survey Methodology, Surveys, Telephone Interviews, Textbooks, Time, Training, trait, Trust, United States National Institutes of Health

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