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News
ELSI Presentations at ASBH 2023
The following is a list of ELSI and ELSI-related sessions at ASBH 2023. Please email us at [email protected] if you would like to add your presentation. Thursday, October 12, 2023 ELSI Affinity… -
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
Research Tool
Inteview Guide: Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing
Ziegler and colleagues developed this semi-structured, qualitative, interview guide to elicit perspectives from Black/African-American participants on direct-to-consumer genetic testing. Topics… -
Research Tool
Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing
Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial… -
Research Tool
Black-White Race Morphs Research Tool
The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face… -
News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
News
ELSI in Review • September 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2023 set explores ethical challenges associated… -
Funding Opportunity
Diversity Centers for Genome Research (U54 Clinical Trials Optional)
- diversity
- Genome research
- Minority Serving Institution (MSI)