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News
ELSI Abroad: Spotlight on Canada
The global effort to map and sequence the human genome was accompanied by initiatives in several countries that supported the study of its ethical, legal, and social implications or aspects. Over… -
News
ELSI in Review • April 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2024 set explores precision microbiome engineering… -
Video
March 2024 ELSI Friday Forum: The Impact of Dobbs on Emerging Reproductive Technologies
In 2022 the US Supreme Court Dobbs vs. Jackson Women’s Health Organization overturned federal protection for abortion. This historic ruling not only relegates this authority to state legislatures but…- Assisted Reproductive Technology
- reproductive rights
- Dobbs
- IVF
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Research Tool
Hierarchical Mapping Technique
The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric… -
News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social… -
Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Video
TraineeHub | Navigating Authorship: Who's on First?
Publishing in a top-notch scientific journal is a great reason for celebration. But getting there takes time, effort, and the ability to navigate power dynamics while maintaining research integrity.…- Authorship
- academic publishing
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Video
Twisted Helix: Can Public-Private Partnership Genomic Projects Be Fair and Equitable?
Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research…- Government
- Industry
- Private Enterprises
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News
ELSI in Review • March 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2024 set explores liability in applications of… -
Research Tool
The Parental Personal Utility Scale (Parent PrU)
The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This…