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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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News
What is ELSI Research?
Thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Office…- ELSI research
- Genomics|History|NHGRI
- Scientific Advances and Accomplishments
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News
The latest attack on the right to abortion: Restricted reasons
Jonathan F. Will, a professor of law at Mississippi College School of Law, identifies a new trend in abortion restrictions. Distinct from previous abortion regulations which rely on the state’s…- abortion
- Selective Abortion
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News
Update on ASHG 2021 Annual Meeting
Dear ASHG Members, With the successful conclusion of ASHG’s first ever virtual meeting, we want to provide you with an update on the Society’s 2021 Annual Meeting. Given the continued uncertainty…- ASHG
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News
Capacities of Global Institutions for Gene Drive Governance
Gene drive technologies represent a promising approach to the reduction of the global health burden posed by insect-borne infectious diseases like malaria and dengue. The application of new…- Gene Drive Technology
- Global Governance
- regulatory
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News
Ethical, Legal, and Social Implications in All of Us
(The following announcement is available online at All of Us, News and Events) Today the All of Us Research Program released the white paper “Ethical, Legal, and Social Implications (…- All of Us Research Program
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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Video
ELSIhub Welcome Video
Welocme! a brief introduction and overview of ELSIhub and CERA.- Welcome overview
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Research Tool
CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey
The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, measures whether parents of… -
Research Tool
CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey
The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, asks adult patients to report whether they…