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CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey

Author(s):

Clinical Sequence Evidence-Generating Research (CSER Phase 2) Consortium

Year:

2019

The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, measures whether parents of pediatric patients took actions (such as sharing the results with healthcare providers) after receiving positive or negative findings on their child's genetic test.

Research Population:

Parents

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CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey

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