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News
What is ELSI Research?
Thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Office…- ELSI research
- Genomics|History|NHGRI
- Scientific Advances and Accomplishments
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News
The latest attack on the right to abortion: Restricted reasons
Jonathan F. Will, a professor of law at Mississippi College School of Law, identifies a new trend in abortion restrictions. Distinct from previous abortion regulations which rely on the state’s…- abortion
- Selective Abortion
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News
Update on ASHG 2021 Annual Meeting
Dear ASHG Members, With the successful conclusion of ASHG’s first ever virtual meeting, we want to provide you with an update on the Society’s 2021 Annual Meeting. Given the continued uncertainty…- ASHG
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News
Capacities of Global Institutions for Gene Drive Governance
Gene drive technologies represent a promising approach to the reduction of the global health burden posed by insect-borne infectious diseases like malaria and dengue. The application of new…- Gene Drive Technology
- Global Governance
- regulatory
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News
Ethical, Legal, and Social Implications in All of Us
(The following announcement is available online at All of Us, News and Events) Today the All of Us Research Program released the white paper “Ethical, Legal, and Social Implications (…- All of Us Research Program
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Research Tool
CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey
The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, measures whether parents of… -
Research Tool
CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey
The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, asks adult patients to report whether they… -
Research Tool
The Personal Utility Scale (PrU)
The Patient Reported Utility (PRU) of Clinical Sequencing Survey asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to… -
Research Tool
Health Care System Distrust Scale
Rose and colleagues developed a 10-item scale to measure distrust of the United States healthcare system (defined as hospitals, health insurance companies, and medical research) for use in the… -
Research Tool
SF-12 Health Survey
Ware and colleagues developed the SF-12, a shortened version of the 36-item short-form (SF-36) health survey, to measure physical and mental health in studies with large samples or constraints on…