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Video
Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara L. Ackerman, MPH, PhD - University of California San Francisco ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry…- Ethics of precision medicine
- precision medicine research
- ELSIconversations
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Video
Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara J. Knight, PhD - University of Utah ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health care system (…- precision medicine research
- Ethics of precision medicine
- ELSIconversations
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News
Natural and social scientists differ in their conceptualization and use of race at a critical moment
In a recent contribution to the Yearbook of Physical Anthropology, Jada Benn Torres reviews the “race-as-biology” paradigms that were promulgated early in the discipline and tracks the emergence of…- genetic anthropology
- race and genetics
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Video
Indigenous Peoples & Genomics: Starting a Conversation
This video is linked to the publication: Indigenous Peoples and Genomics: Starting a Conversation Author Names Jenny Morgan Rachel R. Coe Rochelle Lesueur Ruth Kenny Roberta Price Nancy…- Indigenous Peoples
- Genomics
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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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Video
ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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News
LawSeqSM: Confronting the Legal Barriers to Genomic Medicine
On December 2, 2020 national experts convened for a Zoom webinar on “LawSeqSM: Facing the Legal Barriers to Genomic Research & Precision Medicine.” This event grew out of a project funded by the…- GENETIC engineering laws
- LawSeq
- Statutes and Laws
- genetic privacy law
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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News
What is ELSI Research?
Thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Office…- ELSI research
- Genomics|History|NHGRI
- Scientific Advances and Accomplishments
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News
The latest attack on the right to abortion: Restricted reasons
Jonathan F. Will, a professor of law at Mississippi College School of Law, identifies a new trend in abortion restrictions. Distinct from previous abortion regulations which rely on the state’s…- abortion
- Selective Abortion