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News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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News
Developing Resources for DNA Testing at the Border: BorderDNA Working Group
Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…- genetic testing
- Immigration
- Data Collection
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News
ELSI in Action: Eight Presentations from the ELSI Virtual Forum
The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic. The recorded presentations are now… -
News
Welcome to ELSIhub – Your Portal to ELSI Resources
We are delighted to announce the launch of ELSIhub! ELSIhub is your resource; now is the time to make it your own. Take a look around and bookmark the pages of most interest to you to personalize… -
Video
3. Writing Your Specific Aims
Updated on 11/6/2020 This video is focused on helping you write a strong specific aims page for an ELSI grant application.- Grant
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Video
2. Writing Your NIH ELSI Grant: Getting Started
Updated on 11/6/2020 This video provides an overview of the many components of an NIH grant and explains how to find the instructions you need to complete these various components. It also provides…- Grant
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Video
Closing Remarks
ELSI Virtual Forum - Closing Remarks Sandra Soo-Jin Lee and Mildred Cho- Ethical AI
- Data Analyses
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Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and… -
Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
Video
Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics
The development and aggregation of huge datasets of genomic information, often including hundreds of thousands of participants, has enabled large-scale genome-wide association studies (GWAS) of a…