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Research Tool
Genomic Information and the Right Not to Know Questionnaire
Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey… -
Research Tool
Genetics Pre-Course Survey
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine prior to taking an 8-week course on genomics and personalized medicine. -
Research Tool
Genetics Post-Course Survey (Not-Genotyped)
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.… -
Research Tool
8 Consent Scenarios for a Precision Medicine Cohort Study
These eight consent scenarios that describe consent and data sharing arrangements were used to assess respondents' opinions of the conduct of a precision medicine cohort study on genes and… -
Research Tool
Willingness to Participate in a Precision Medicine Cohort Study, Survey
This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: A Toolkit
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 1
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 2
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Measure of Genetics Knowledge
This measure of knowledge about genetics has 21-items completed on a binary scale. Performance can be scored by summing the number of correct answers (chance performance is 10.5). -
Research Tool
Research Scenarios Associated with Moral Concerns
In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent. They measured respondent comprehension of this…