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Grant Abstract
The Moana Project: The Connection Between Pacific Islanders and Genetics
PROJECT NARRATIVE The Moana Project is dedicated to fostering community engagement and dialogue about genetic research within the Pacific Islander community. Our objective is to facilitate the… -
Grant Abstract
Gene Selection for Newborn Sequencing Studies
PROJECT NARRATIVE To add genomic sequencing into public health newborn screening (NBS) in a way that maximizes benefits (e.g., access to life-saving treatments) and minimizes harm (e.g., treating… -
Grant Abstract
Supporting pregnant patients as they face a changing landscape of prenatal genetic tests and post-diagnosis options
PROJECT NARRATIVE The goal of this study is to generate supportive scientific evidence for strategies that will facilitate informed decision-making about PS&D by diverse populations of pregnant… -
Grant Abstract
Supporting just-in-time consent for prenatal screening in diverse populations
PROJECT NARRATIVE This study will compare a novel, mobile-friendly, just-in-time consent model to current ways of offering prenatal genetic screening. The clinical trial will recruit at three diverse… -
Grant Abstract
Fairness in Practice: Defining and Implementing Diversity & Representation in AI datasets for Healthcare
We will examine how researchers who are conducting research projects funded by the National Institutes of Health to develop artificial intelligence in healthcare think about and put into practice… -
Grant Abstract
Developing strategies for using DNA data to assist family reunifications across child development stages
PROJECT NARRATIVE No protocol exists for use of living children’s DNA to reunify families separated due to disasters, armed conflict, or migration, despite DNA data being a powerful biometric tool… -
Grant Abstract
Promoting Access to Payment Pathways for Emerging Molecular Diagnostics
PROJECT NARRATIVE. Molecular diagnostics (MDx) can provide personalized care and improve patient outcomes; however, disparities in payment for MDx create barriers that delay or prevent patients from… -
Grant Abstract
From Research to Clinic: Addressing Ethical and Policy Challenges Facing the Gene Therapy Ecosystem
PROJECT NARRATIVE The translational gene therapy ecosystem faces several interrelated challenges: 1) obtaining sufficient evidence of safety/efficacy from clinical trials to justify regulatory… -
Grant Abstract
Understanding barriers and facilitators to pharmacogenomic testing in chronic pain care
Project Narrative: Pharmacogenomics has the potential to improve medication safety in the treatment of chronic pain—which impacts an estimated 1 in 5 adults; however, testing is rarely ordered. Pain… -
Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
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