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The MCET and a community of academics, researchers and practitioners have designed an interdisciplinary educational program about the ethical, social and legal implications of the HGP. Using multiple…

The directors of genetic counseling training programs met to update graduate education curricula. The focus was threefold: ethnocultural issues; ethical, social and legal implications of the HGP; and…

This project will examine the issue of affording access to the technologies that are expected to emerge from the Human Genome Project (HGP). The potential impact of these technologies on the fate of…

Problems in international cooperation may arise if genetics centers in different nations operate under different ethical standards. A survey will be conducted for the HGP. Geneticists in 34 nations…

The purpose of this project is to address the professional dilemmas of nurses related to genetic information about patients and their families. Continuing education in genetics is not widely…

The CHLC was the first genome center to have an ELSI core as an ongoing part of the center. The ELSI core has two areas of focus. First, it has formed a multidisciplinary IRB-type committee that…

The goal of this project is to collect, and disseminate information on the ethical, legal, and social implications of human genetics. 'Human genetics' includes the HGP, genetic testing and…

This project will examine the moral basis of, and legal and policy framework for, health and life insurance in light of the increase that the HGP is expected to generate in genetic screening capacity…

The objective of this research is to conduct and evaluate a pilot program for the simultaneous screening of carriers for CF, Tay Sachs Disease (TSD) and Gaucher's Disease (GD) in the Ashkenazi…

This study will use survey and case study methodologies to examine Academic-Industry Relations (AIRs) in genetics and related fields. Results will contribute to assessment of: 1) how AIRs have…