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Grant Abstract
Confidentiality, Privacy & Insurance
The purpose of this project is to contribute empirical data concerning the values, beliefs, and experiences of persons (or family members of persons) with genetic conditions regarding informational…- AIDS
- Belief
- Cystic Fibrosis
- Diabetes Mellitus
- disease /disorder proneness /risk
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Grant Abstract
Research, Treatment and Informed Consent in Gene Therapy
This project is designed to analyze the adequacy of the Belmont Report's distinction between research and treatment as a basis for informed consent policy especially as it pertains to gene…- behavioral /social science research tag
- Clinical Research
- Decision Making
- gene therapy
- health care policy
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Grant Abstract
ELSI Research in Two Native American Communities
The specific aims of this project are: to identify the ethical, legal, and social implications of the HGP from the perspectives of two Native American communities, with particular emphasis on Native…- behavioral /social science research tag
- culture
- data collection methodology /evaluation
- Decision Making
- Ethics
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Grant Abstract
Engaging Minority Communities in Genetics Policy Making
This renewal project, conducted by a consortium of three universities (University of Michigan, Michigan State University and Tuskegee University) will develop a process for engaging minority…- African American
- Attitude
- behavioral /social science research tag
- community
- Decision Making
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Grant Abstract
Prenatal Testing for Genetic Disability
This project will investigate the nature of disability to articulate, for public policy, the purposes for which emerging testing capabilities ought ethically to be used. To analyze the nature of…- Alzheimer's Disease
- behavioral /social science research tag
- Caregivers
- Clinical Research
- deafness
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Grant Abstract
Optimizing Prenatal Testing Decision-Making
This project will study the role of patient preferences and other factors in choices regarding use of prenatal screening for and diagnosis of chromosomal disorders in a racially/ethnically diverse…- African American
- age at pregnancy
- Amniocentesis
- Asian Americans
- behavioral /social science research tag
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Grant Abstract
Hemophilia 'A' Carrier Testing--Acceptance and Reactions
This study will (a) describe the medical, genetic, and carrier knowledge and beliefs in a population of female relatives of individuals with severe type A hemophilia before and after the relatives…- adult human (21+)
- behavioral /social science research tag
- Clinical Research
- coagulation factor VIII
- family genetics
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Grant Abstract
An Empirical Study of Change in Public Genetic Discourse
This study employs a critical content analytic approach to ascertain the degree of perfectionist, essentialist and discriminatory social norms associated with the rise in public discourse about…- behavioral /social science research tag
- Clinical Research
- data collection methodology /evaluation
- Decision Making
- Genetic Counseling
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Grant Abstract
Summer Genetics Program for Nursing Faculty
The two specific aims for the proposed summer genetics program for nursing faculty are: (a) to increase nursing faculty knowledge about human genetics and its clinical application, and b) to increase…- Continuing Education
- curriculum
- Genetic Counseling
- Genetics
- human subject
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Grant Abstract
Expanded Genetics Educational Program for Nursing Faculty
The two specific aims are unchanged for the expanded Genetics Educational Program for Nursing Faculty: a) to increase nursing faculty knowledge about genetics and its clinical application, and b) to…- Continuing Education
- curriculum
- Genetic Counseling
- Genetics
- Internet