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News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
News
ELSI Presentations at ASBH 2023
The following is a list of ELSI and ELSI-related sessions at ASBH 2023. Please email us at [email protected] if you would like to add your presentation. Thursday, October 12, 2023 ELSI Affinity… -
Video
TraineeHub: Finding and Making Sense of NIH Funding Opportunities
"Finding and Making Sense of NIH Funding Opportunities" took place on October 3, 2023. Identifying funding opportunities at NIH that match your career and research goals can be overwhelming.… -
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
Video
TraineeHub: Publishing ELSI in Scientific Journals
"Publishing ELSI in Scientific Journals" took place on September 7, 2023. This session was tailored to trainees and early career scholars aspiring to publish ELSI-related work in scientific… -
Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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News
ELSI in Review • September 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2023 set explores ethical challenges associated… -
News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their…