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News
ELSI in Review • February 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2023 set explores concerns about the… -
Video
Constructing Strategies to Address and Assess Equity, Outreach, and Impact
The second session highlights strategies and solutions to some of the issues raised in Session 1. There is a specific focus on community engaged research and implementation strategies that target…- community based research
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Video
Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical…- Population screening and public health genomics
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Video
Wrestling with Social and Behavioral Genomics
Social and behavioral genomics research uses huge sets of genetic data in attempts to shed light on phenotypes from smoking and eating behaviors, to psychiatric disorders, to sexuality and…- Sociobehavioral genetics
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Video
ELSIcon2022 Paper: The lack of a standard definition of clinical utility limits the assessment of the clinical impacts of whole exome/whole genome sequencing
ELSIcon2022 • Paper • May 31, 2022 Claudia Azuelos, Anne-Marie Laberge Background: Whole-exome sequencing (WES) and whole-genome sequencing (WGS) are diagnostic tests for rare genetic diseases.…- Live
- Paper
- Language and categorization
- Genetic testing and screening
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Video
ELSIconversations ELSICon2022: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia
Co-Moderators: Nora Henrikson, PhD, MPH & Mildred Cho, PhD Presenters: Gemme Campbell-Salome, PhD, Kelly Morgan, LGC, & Eric Tricou MS, CGC Link to pre-recorded…- Familial Hypercholesterolemia
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News
ELSI in Review • January 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2023 set explores the ethics of digital twins in… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
Video
ELSIconversations ELSICon2022: The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?
Co-Moderators: Johanna Crane, PhD & Mildred Cho, PhD Presenters: Katherine Blizinsky, PhD; Subhashini Chandrasekharan, PhD; Sonya Jooma, MA & Rachel Bailey, ABD Links to…- precision medicine research
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Video
Genetic Advantages in Sports: When Do They Count as "Doping"?
What is the essence of sports, and how does that impact the way doping is defined? The sports world is already preparing for an inevitable wave of "gene-doping" as gene-transfer technologies advance…- Doping In Sports
- Sports
- Genetic Enhancement
- genetic therapy
- Gene Transfer