Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical and equity considerations of informed consent, defining utility, selecting genes of interest, and managing downstream care. Recognizing that many people in the audience will also have relevant experience, everyone will be invited to share their experiences and concerns through live discussion with the panelists and through an online whiteboard.
Speakers: Aaron Goldenberg, PhD, MA, MPH & Amy Sturm, MS, CGC, & Adam Buchanan, MS, MPH, CGC
Moderator: Kim Foss, MS, CGC
Suggested citation:
Goldenberg, A., Sturm, A., Buchanan, A. & Foss, K. (2023, January 20). Session 1: Illuminating ethical issues encountered in population screening programs [Video]. The Center for ELSI Resources and Analysis (CERA). https://elsihub.org/video/illuminating-ethical-issues-encountered-population-screening-programs
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Videos in Series
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ELSIconversations 5: Population Genetic Screening Programs - ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
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ELSIconversations 5: Population Genetic Screening Programs - Constructing Strategies to Address and Assess Equity, Outreach, and Impact