Series
ELSIconversations on Population Genetic Screening Programs
Illuminating Ethical Issues Encountered in Population Screening Programs
Type
Conference
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical and equity considerations of informed consent, defining utility, selecting genes of interest, and managing downstream care. Recognizing that many people in the audience will also have relevant experience, everyone will be invited to share their experiences and concerns through live discussion with the panelists and through an online whiteboard.
Speakers: Aaron Goldenberg, PhD, MA, MPH & Amy Sturm, MS, CGC, & Adam Buchanan, MS, MPH, CGC
Moderator: Kim Foss, MS, CGC
Tags
Keywords
Population screening and public health genomics
Transcript File
ELSIconversations 1_20_23 Resources .pdf
(55.61 KB)
Videos in Series
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ELSIconversations on Population Genetic Screening Programs - ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
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ELSIconversations on Population Genetic Screening Programs - Constructing Strategies to Address and Assess Equity, Outreach, and Impact