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Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Publication
Bridging the gap: Returning genetic results to Indigenous communities in Latin America
Frontiers in Genetics -
Publication
Being in good community: Engagement in support of Indigenous sovereignty
American Journal of Bioethics -
Publication
Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities
Clinical Pharmacology and Therapeutics -
Publication
Genetic research within Indigenous communities: Engagement opportunities and pathways forward
Genetics in Medicine -
Publication
Culturally appropriate consent processes for community-driven indigenous child health research: A scoping review
BMC Medical Ethics -
Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Publication
Indigenous genomic databases: Pragmatic considerations and cultural contexts
Frontiers in Public Health -
Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement