Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
1031 - 1040 of 3992 Topics
-
Additional Resource
Oregon 2019 State Bills (Oregon 2019 SB 676)
Establishes Review Committee on Newborn Screening for purposes of studying, evaluating and making proposals related to newborn screening, including the potential impact of genomic sequencing on tests…- state bill
- bill
- bill status died
- Oregon
- Newborn screening
-
Publication
Paediatric biobanking for health: The ethical, legal, and societal landscape
Frontiers in Public Health -
Video
Balancing Data Privacy and Data Sharing: Normative and Technical Approaches
ELSI Friday Forum • April 8, 2022 To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to…- data privacy
-
Publication
Attitudes toward genetic research review: Results from a national survey of professionals involved in human subjects protection
Journal of Empirical Research on Human Research EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Parents' understanding of genome and exome sequencing for pediatric health conditions: A systematic review
European Journal of Human Genetics -
Publication
Parents’ understanding of genome and exome sequencing for pediatric health conditions: A systematic review
European Journal of Human Genetics -
Research Tool
Data Dictionary: Utah Genome Project - Informed Consent
This project evaluated simplified tools used to inform the public around the consent process. The data dictionary for this study outlines the structure, content, and variable definitions for the… -
Publication
Review of C.B. Mitchell, E.D. Pellegrino, J.B. Elshtain, J.F. Kilner, and S.B. Rae. Biotechnology and the Human Good
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos
-
Publication
Racial and ethnic disparities in genetic testing for hearing loss: A systematic review and synthesis
Human Genetics