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Grant Abstract
The Promises and Pitfalls of Native Genetic Research
The goal of this project is to explore the range of ethical, legal, and social implications of genetic research and health services with Indian and Native peoples. These issues have proven to be…- behavioral /social science research tag
- Clinical Research
- culture
- Ethics
- Experimental Designs
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Publication
Author responds to "review of Carl Elliott, Better than well: American medicine meets the American dream" by Paul Root Wolpe
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Codebook: Improving Understanding about Pre-Implantation Genetic Screening (PGS) with In Vitro Fertilization
The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The REDCap codebook for this study outlines… -
Research Tool
Codebook: Meaning of Screening
This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The REDCap codebook for this study outlines… -
Research Tool
Codebook: Newborn Screening Education
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The REDCap codebook for this study outlines each… -
Research Tool
Data Dictionary: ENLITE - Evaluating the Benefits and Limitations of Next Generation DTC
Kilbride and colleagues developed this data dictionary for the ENLITE Study. The ENLITE study explored public perceptions and knowledge of direct-to-consumer genetic testing. The data dictionary for… -
Grant Abstract
CSER RoRC Centralized Support Coordinating Center
The Clinical Sequencing Exploratory Research (CSER) and Return of Results Consortium (RoRC) programs are designed to investigate critical questions about the application of genomic sequencing to…- Area
- Bioethics
- Bioinformatics
- Biology
- Caring
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Publication
Voluntary workplace genomic testing: Wellness benefit or Pandora's box?
npj Genomic MedicineSanghavi and colleagues discuss the appeal of voluntary workplace genomic testing for employers and employees, offer a historical perspective on genetic testing in the workplace, outline the legal… -
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Publication
A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories
Public Understanding of Science