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Grant Abstract
Engaging African Communities for the HapMap Project
The Haplotype Map (HapMap) Project is an international collaborative project to produce a haplotype map of the human genome. The HapMap is expected to be a key resource for more efficient genome-wide…- African
- biotechnology
- Clinical Research
- community health services
- culture
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Grant Abstract
Community-engaged Research Toward Precision Medicine with AIAN People
The overall goal of the proposed research is to advance policy approaches to support Precision Medicine research (PMR) with American Indian and Alaska Native (AIAN) people through culturally…- Alaska
- Alaska Native
- American Indians
- Area
- biomarker discovery
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Grant Abstract
Community Voices on Health Disparities and Translational Genomics Research
The relevance of genomics research for addressing health disparities between population groups is currently being debated. As a practical matter, if genomics hopes to have any role in reducing health…- African American
- Area
- base
- Belief
- Bioethics
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Grant Abstract
Trust and Genetics Research in Diverse US Communities
This proposal seeks to build on 4 years of funded work on the ethical, legal, and social implications (ELSI) of genetic research in American Indian and Alaska Native (AI/AN) communities. In the…- Address
- Alaska Native
- Alcohol dependence
- Alcoholism
- Alcohols
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Collection
Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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Publication
Perspectives from a predominantly African American community about biobank research and a biobank consent form
Ethics & Human ResearchSedig and colleagues identified trust as the most common theme in transcripts of focus group discussions about the consent form for the University of Michigan Medical School Central Biorepository.… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 3
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 1
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 2
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Video
Developing Pathways for Community-led Research with Big Data: A Content Analysis of Stakeholder Interviews
Megan Doerr, MS, LGC - Sage Bionetworks & Joon-Ho Yu, MPH. PhD - University of Washington ELSIconversations - March 5, 2021 Big data (BD) informs nearly every aspect of our lives and, in health…- Big Data
- Community Engagement