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Research Tool
Data Dictionary: Alternate Understandings of Genetic Causation
The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising… -
Research Tool
Data Dictionary: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information… -
Additional Resource
Consensus Study Report, Cells and Surveys: Should Biological Measures Be Included in Social Science Research? (2001)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts that explored the ethical and legal concerns of collecting…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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News
Genomics in Society: New Developments, New Questions: Discussions with Journalists
SERIES INFORMATION Journalists, journalism students, journalism educators and all interested parties: please join us on for a series of discussions on "Genomics in Society: New Developments, New…- ELSI
- Journalism
- Sociogenomics
- Behavioral genomics
- forensic DNA
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Publication
What's out there for parents? A systematic review of online information about prenatal microarray and exome sequencing
Prenatal Diagnosis -
Publication
Stem cell research: Biomedical ethics reviews, edited by James M. Humber and Robert F. Almeder
Ethical PerspectivesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Do the print media "hype" genetic research? A comparison of newspaper stories and peer-reviewed research papers
CMAJ/JAMC: Canadian Medical Association JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Health data sharing attitudes towards primary and secondary use of data: A systematic review
eClinicalMedicine -
Research Tool
Data Dictionary: Willingness to Pay (WTP)
Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…