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Video
ELSIcon2024: From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University Scholars have long recognized challenges…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- precision medicine
- Use of race, ethnicity, and ancestry categories
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Publication
Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Klinefelter syndromes: A systematic literature review
Prenatal DiagnosisDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Genetics in Nursing Literature and Continuing Education
This project is a case study in dissemination of emerging knowledge in genetics for utilization in nursing as a practice discipline. The ultimate purpose of this project is to increase dissemination…- Continuing Education
- Genetics
- Information Dissemination
- literature survey
- meeting /conference /symposium
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Publication
Genomic screening of the general adult population: Key concepts for assessing net benefit with systematic evidence reviews
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): P50HG004488, U01HG006487 -
News
Trainee Connect Mentor - Mentee Relationship Continues
The CERA TraineeHub program supports the research and career goals of trainees and early career scholars of all disciplines with an interest in the ethical, legal, and social implications of genetics… -
Video
ELSIconversations - Pharmacogenomic Testing (PGx) in Psychiatric Care: Exploring Ethical and Regulatory Frontiers, Session 1
Session title: An Overview of Pharmacogenomic Testing (PGx) from an ELSI, Psychology, and Psychiatry Perspective Duke Margolis Institute for Health Policy and CERA Collaboration This…- Mental Health
- PGx
- pharmacogenomics
- Psychology
- Psychiatry
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Publication
Genomics in the era of COVID-19: Ethical implications for clinical practice and public health
Genome MedicineGeller and colleagues offer key ethical questions to consider in the application of genomics to COVID-19 management decisions. -
Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect