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Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect
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Research Tool
Codebook: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information… -
Research Tool
Codebook: Alternate Understandings of Genetic Causation
The aim of this project was to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising… -
Additional Resource
Workshop Proceedings, Understanding Disparities in Access to Genomic Medicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies of Sciences, Engineering, and Medicine publication provides a description of the proceedings of a June 27, 2018 public workshop organized by the Roundtable on Genomics and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Implications of Genome Research: A Summer Institute
During each of the summers of 2000, 2001 and 2002, Dartmouth's Ethics Institute proposes to offer a Faculty Institute to a group of 20 college and university teachers in order to prepare them to…- behavioral /social science research tag
- biotechnology
- curriculum
- Education
- education evaluation /planning
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Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
- social marketing
- Social Policies
- Advisory Committees
- educational models
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Additional Resource
Image Archive on the American Eugenics Movement
A team of researchers from the Dolan DNA Learning Center of Cold Spring Harbor Laboratory created the Image Archive on the American Eugenics Movement website to host 2,500 photos, correspondence,…- Eugenics
- Bioethics History
- eugenics movement
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Additional Resource
Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research: Audio Recommendations
The National Academies of Sciences, Engineering, and Medicine produced this audio file summarizing recommendations for the use of population descriptors in human genetics and genomics research.- NASEM
- population descriptors
- genetic ancestry
- genomics research
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Publication
Genetic testing and the family
American Journal of Medical Genetics Part C (Semin. Med. Genet) -
Research Tool
Codebook: Willingness to Pay (WTP)
Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…