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Publication
Is whole-exome sequencing an ethically disruptive technology? Perspectives of pediatric oncologists and parents of pediatric patients with solid tumors
Pediatr Blood CancerClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG006485 -
Publication
Genetic ties and the future of the family: The impact of paternity testing on parents and children
Johns Hopkins University Press -
Publication
Making sense of heritable human genome editing: Scientific and ethical considerations
Progress in Molecular Biology and Translational Science -
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Publication
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
CellMackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology. -
Publication
Biomedical, ethical, and moral issues being forced by advanced medical technologies
Proceedings of the American Philosophical SocietyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Compressed foresight and narrative bias: Pitfalls in assessing high technology futures
Science as CultureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Clinician-reported Genetic Testing Utility Index (C-GUIDE)
Hayeems and colleagues developed The Clinician-reported Genetic Testing Utility Index (C-GUIDE) to define and quantify the clinical utility of genetic testing. C-GUIDE was designed to capture the… -
Publication
Placing a moratorium on research cloning to ensure effective control over reproductive cloning
Hastings Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Indirect commodification of ova donation for assisted reproduction and for human cloning research: Proposals for supranational regulation
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…