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Publication
Including diverse and admixed populations in genetic epidemiology research
Genetic Epidemiology -
Publication
Perception of personalized medicine, pharmacogenomics, and genetic testing among undergraduates in Hong Kong
Human Genomics -
Publication
Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: Systematic evidence review for the U.S. Preventive Services Task Force
Annals of Internal MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
New York State Statute (New York: NYCL (CVR) 79-l)
Prior informed consent is required to perform a genetic test. Further disclosures require additional consent. For medical research purposes and with approval from an institutional review board and…- state statute
- New York
- genetic privacy
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Grant Abstract
Ethical, Legal, and Social Implications in Military Genomics
Advances in genomic science are attracting the interest of the U.S. military for their potential to improve medical care for members of the militay and to aid in military recruitment, training and…- biobank
- Bioethics
- Biomedical enhancement
- Caring
- combat
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Research Tool
Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)
Peshkin and colleagues developed and tested the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS) to assess parental attitudes about and interest in testing their minor children for BRCA 1/2… -
Additional Resource
Promoting Safe and Effective Genetic Testing in the United States Glossary, National Human Genome Research Institute (NHGRI)
The Promoting Safe and Effective Genetic Testing in the United States Glossary, produced by the National Human Genome Research Institute (NHGRI), provides short definitions of genetics terms and…- genetic terms glossary
- glossary
- NHGRI
- NIH
- learning tool
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Publication
Review of K. R. Monroe, R. B. Miller, and J. Tobis. Fundamentals of the stem cell Debate: The scientific, religious, ethical and political issues
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Workshop Proceedings, Privacy Issues in Biomedical and Clinical Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1998)
This National Academies Press publication summarizes the proceedings of a workshop that explored how pending privacy legislation in Congress (Fall, 1997) would affect genetic research. The workshop…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Center on the Ethics of Indigenous Genomic Research
Narrative American Indian and Alaska Native concerns about genomic research have been well-documented and continue to constitute significant obstacles to participation in genomic research. Our center…- Academy
- Address
- Alaska Native
- American Indians
- Area