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Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening
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Video
ELSIconversations ELSICon2022: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia
Co-Moderators: Nora Henrikson, PhD, MPH & Mildred Cho, PhD Presenters: Gemme Campbell-Salome, PhD, Kelly Morgan, LGC, & Eric Tricou MS, CGC Link to pre-recorded…- Familial Hypercholesterolemia
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Publication
Public sector genetic services in Florida and Georgia: Current status and potential issues raised by the Human Genome Project
U.S. Department of Energy -
Job Posting
Research Fellow, AI Ethics
We are looking to appoint an experienced and enthusiastic postdoctoral researcher to join our team. The successful candidate will contribute to the project on AI Ethics. Professor Julian Savulescu…- AI
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News
Journal of Community Genetics: Call for Papers
CALL FOR PAPERS - SPECIAL ISSUE Global accessibility and applicability of polygenic scores Article submission deadline: July 9th, 2022 Submit at www.editorialmanager.com/jocg/ and…- call for submissions
- Journal of Community Genetics
- special issue
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Publication
Perspectives of research ethics committees on the challenges of human genomic research participation in Ethiopia
Journal of Empirical Research on Human Research Ethicsby Herani Sahlu Dembu, Hailemichael Getachew, Polly J. Price, Jessica Sales, & Liya Wassie -
Additional Resource
Workshop Proceedings, An Examination of Emerging Bioethical Issues in Biomedical Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
This National Academies Press publication summarizes the proceedings of a workshop that explored bioethical issues related to the development and use of digital technologies, artificial intelligence…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Center for Genomics and Society at University of North Carolina-Chapel Hill
Gail Henderson was Principal Investigator of the Center for Genomics and Society at University of North Carolina-Chapel Hill. This center conducted an integrated set of research, policy,…- CEER
- GeneScreen
- Newborn screening
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Grant Abstract
Ethical, Legal and Social Issues for Precision Medicine and Infectious Disease
Precision medicine is an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person. The Precision…- Attention
- Bioethics
- burden of illness
- career development
- Chronic Disease
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Additional Resource
Consensus Study Report, Integrity in Scientific Research: Creating an Environment That Promotes Responsible Conduct, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2002)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on ethics in the scientific community. It outlines the findings, conclusions, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding