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Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 4a
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 4b
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Grant Abstract
The Human Genome Project: Reaching the Minority Communities of Maryland
This two-day conference will provide information about the Human Genome Project (HGP), and specifically the ethical, legal, and social implications (ELSI) of the HGP, to members of minority… -
Grant Abstract
Genome Diner: A strategy for community-researcher engagement in genome sciences
As evidenced by the endless reports of new discoveries in genetics and genomics over the past few decades, the public's views will substantially influence the uptake and use of these new…- Benefits and Risks
- Biological Sciences
- Biomedical Research
- Class
- clinical application
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Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community
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Publication
Indigenous genomics
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Re-envisioning community genetics: Community empowerment in preventive genomics
Journal of Community Genetics -
Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2024: Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City Social epigenomics research (SER) linking…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- precision medicine
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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics