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Consensus Study Report, Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on research data management and stewardship in the context of digital technologies. It…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Center for Integration of Research on Genetics and Ethics
Modern genetic research gives us unprecedented ability to understand and manipulate fundamental biological processes. Our growing potential to understand and shape the world in genetic terms also…- Achievement
- Acute
- Address
- Altruism
- anti social
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Publication
Sharing data to build a medical information commons: From Bermuda to the Global Alliance
Annu Rev Genomics Hum GenetDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Grant Abstract
Ensuring Confidentiality in the Publication of Pedigrees
This project will address problems in maintaining privacy and confidentiality in the publication of pedigrees in the biomedical literature. The study will: (1) conduct a survey of scientific journal… -
Additional Resource
Consensus Study Report, On Being a Scientist: A Guide to Responsible Conduct in Research: Third Edition, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academy of Sciences, National Academy of Engineering, and Institute of Medicine publication describes professional standards for ethical scientific conduct. Topics include best…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Video
November 2024 EFF: Material (Mis)Identities: Art, Genes and Ethics
How can genetically-incorporated art examine, highlight, and challenge existing social constructs such as the formation of racial identity? This ELSI Friday Forum explored this question and focused…- Humanities and the Arts
- race and bioethics
- Genes
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Grant Abstract
Ethics and Safeguards in Psychiatric Research
Psychiatric genetic research (PGR) holds great promise for preventing, understanding, and treating neuropsychiatric disorders - a source of immense societal burden and personal suffering. Such…- Addiction
- Address
- Area
- Attitude
- base
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Publication
Preliminary perspectives on DNA collection in anti-human trafficking efforts
Recent Adv DNA Gene SeqDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
News
Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce
View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022 Purpose The National Human Genome Research Institute (NHGRI) solicits nominations for its first annual Outstanding…- Applications Grants