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PRIM&R Member Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
The PRIM&R Member Survey was used in the ROMP study to elicit the perspectives of a random selection of human subjects research professionals from the Public Responsibility in Medicine and… -
Publication
Insurance coverage does not predict outcomes of genetic testing: The search for meaning in payer decisions for germline cancer tests
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007307, U01HG006507 -
Video
Beyond the Score: Ethical & Social Considerations of Polygenic Embryo Screening (PES)
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors. This series provides a unique opportunity to earn Category 1…- genetic counselor
- polygenic risk score
- Embryo
- IVF
- Assisted Reproductive Technology
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Publication
Is biotechnological medicine a curse or a blessing? Lessons learned from the international eugenics movement, 1900-1945
Institut fur AsienkundeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Viewing Translational Genomics through an Ethical, Legal/Policy, Social Implications (ELSI) Lens Syllabus
This core developed by Jennifer B McCormick examines fundamental concepts in scholarship on the ethical, legal/policy, social implications of genetic and genomic science. These include how the field…- syllabus
- translational genomics
- personalized medicine
- genetic discrimination
- return of results
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Job Posting
Associate Professor or Professor and Chair, Bioethics and Humanities
The University of Washington School of Medicine is seeking candidates for Chair of the Department of Bioethics and Humanities. The Chair will guide the mission and vision of the Department, which is…- Humanities
- Bioethics
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Job Posting
Associate Professor or Professor and Chair, Bioethics and Humanities
The University of Washington School of Medicine is seeking candidates for Chair of the Department of Bioethics and Humanities. The Chair will guide the mission and vision of the Department, which is…- Humanities
- Bioethics
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Publication
"I'm Happy if I Can Help". Public views on future medicines and gene-based therapy in Iceland
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
"Let's just wait until she's born": Temporal factors that shape decision-making for prenatal genomic sequencing amongst families underrepresented in genomic research
Front GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 5K12HD001262-18, U01HG009599