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Publication
Perspectives from a predominantly African American community about biobank research and a biobank consent form
Ethics & Human ResearchSedig and colleagues identified trust as the most common theme in transcripts of focus group discussions about the consent form for the University of Michigan Medical School Central Biorepository.… -
Video
Exploring Difference in the Biology Classroom: Engaging with Genetic Disability and Difference
Date: March 8 2023, 3-4 pm PT / 6-7 pm ET Language in biology and medicine can frame disability as a deviation from what is normal, acceptable, and welcome - a framework that can extend…- Continuing Education
- disability
- biology education
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Publication
An eMERGEing definition of patient engagement in genetic counseling
Journal of Genetic Counseling -
Publication
Engagement and return of results preferences among a primarily African American genomic sequencing research cohort
Am J Hum GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG200387-07 -
Publication
Engagement and return of results preferences among a primarily African American genomic sequencing research cohort
American Journal of Human Genetics -
Publication
Perspectives on precision health among racial/ethnic minority communities and the physicians that serve them
Ethnicity & Disease -
Publication
Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
The Human Genome Project: Reaching the Minority Communities of Maryland
This two-day conference will provide information about the Human Genome Project (HGP), and specifically the ethical, legal, and social implications (ELSI) of the HGP, to members of minority…