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1301 - 1310 of 4332 Topics
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Publication
From disparity to difference: How race-specific medicines may undermine policies to address inequalities in health care
Southern California Interdisciplinary Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Challenges in returning results in a genomic medicine implementation study: The Return of Actionable Variants Empirical (RAVE) study
npj Genomic Medicine -
Publication
Technical categories and ethical justifications: Why Cwik’s approach is the wrong way around for categorizing germ-line gene editing
American Journal of Bioethics -
Publication
Ethical issues in clinical genetics: A report of a Joint Working Party of the College Committee on Ethical Issues in Medicine and the College Committee on Clinical Genetics
Journal of The Royal College of Physicians of LondonDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Confronting the issues of therapeutic misconception enrollment decisions, and personal motives in genetic medicine-based clinical research studies for fatal disorders
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
How Do Employers Make Decisions About New Health and Wellness Benefits? Current Practices Related to Workplace Genetic Testing, and Future Innovations for the Role of Diagnostics in the Employer-Based US Health Care Ecosystem
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors. This series provides a unique opportunity to earn Category 1…- workplace genetic testing
- workplace wellness
- employers
- employees
- insurance
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Grant Abstract
A Policy-Oriented History of Newborn Screening for PKU
Phenylketonuria (PKU) has played a prominent role in the development of modern genetic medicine. Individuals with this rare inherited disease are unable to metabolize phenylalanine, an essential…- adolescence (12-20)
- adult human (21+)
- behavioral /social science research tag
- Behavioral Genetics
- Clinical Research
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Grant Abstract
Scalable tools to effectively translate genomic discoveries into the clinic
PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently,…- Address
- Area
- Attitude
- base
- Caring
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Grant Abstract
Scalable tools to effectively translate genomic discoveries into the clinic
PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently,…- Address
- Area
- Attitude
- base
- Caring
-
News
ELSI in Review • June 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in…