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News
ELSI in Review • August 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2023 set explores ethical implications of… -
Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
Human genome editing is a powerful tool for creating precise changes to the genome, an organism+D6s complete set of genetic material. With these advances has come an explosion of interest in the…- Address
- Adopted
- base
- Basic Science
- Belief
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Additional Resource
Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy
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Publication
Utility of internal markers to improve the accuracy of cystic fibrosis genotype analysis
Biotechniques -
Research Tool
CSER Phase 1: Cardiologist Consent Form - The MedSeq™ Pilot Project: Integrating Whole Genome Sequencing into Clinical Medicine
The purpose of the MedSeq Project was to develop a process for a process for integrating information obtained from whole genome sequencing into clinical practice and to explore how physicians and… -
Publication
Practical, economic, and policy implications of the Leve et al. paper
Prevention Science -
Publication
Factors affecting nurses' genetic nursing competency: A systematic review
Nursing Education in Practice -
Additional Resource
Consensus Study Report, Organ Donation Opportunities for Action (2006)
This report of the Committee on Increasing Rates of Organ Donation convened by the Institute of Medicine of the National Academies discusses ethical and social issues associated with increasing rates…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding