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Video
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…- Data Governance
- data sovereignty
- genomic data sharing policy
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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Publication
Gene editing sperm and eggs (not embryos): Does it make a legal or ethical difference?
Journal of Law, Medicine & Ethics -
News
New NHGRI Funding Opportunity - Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program
CERA is excited to share information about the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program (pronounced “bear”), a new ELSI funding opportunity offered… -
Video
ELSIcon2022 Paper: Embryoids: What are they, should we be concerned, should they be regulated, and if so, how?
ELSIcon2022 • Paper • June 3, 2022 Ana Iltis, Kirstin Matthews Researchers have made significant strides toward studying human embryogenesis by culturing human embryos longer and creating…- Live
- Paper
- Emerging technologies - public opinion and policy
- Gene therapy and gene editing
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Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program
This project will evaluate a BRCA1 predisposition testing program modeled closely on the Huntington Disease paradigm for members of previously identified families in which cancer susceptibility has…- breast neoplasms
- cancer prevention
- cancer risk
- family genetics
- Female
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Grant Abstract
The ELSI Electronic Case Book Project
This pilot project will develop a World-Wide Web document, the ELSI Electronic Case Book, to introduce primary care physicians and non physician providers to their future roles as facilitators of the…- allied health education
- behavioral /social science research tag
- biotechnology
- Books
- Ethics
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Grant Abstract
Human Genome Hispanic Outreach Initiative
The Human Genome Hispanic Outreach Initiative will be an informal educational outreach project introducing Hispanics adults (25-49 years old) to basic science concepts, technologies, and societal…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Publication
An assessment of a shortened consent form for the storage and research use of residual newborn screening blood spots
J Empir Res Hum Res EthicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037